Thursday, April 07, 2011

A foggy, foggy day

No, not in London town, but most certainly in Plymouth.

We are off to our camp in the country tomorrow for two weeks of Lizard loveliness, courtesy of Kate and Phil at Franchis (pictured left).

A year has made a big change. John and I are slowly coming to terms and learning to cope with his health problems and the help we have had from the NHS has been superb. We are trying to work out ways that we can work together from home in the future so that we don't have to be relieant on out of work benefits. John cannot go out to work -well not without a supremely understanding employer and a number of adaptations and very close supervision - however we could, for the moment, work together from home. There has been no real clarification on the fact that John's condition is, I believe, progressive - however, there is at least some sort of record of his ability now and that will be able to be measured in the future. There is also a recognition that his own intellect and articulacy has masked the cognitive impacts of his strokes.

Being at home together is providing a kinder, less stressed environment and we are moving together to make things better because we love each other.

My two older children continue to defy the paucity of expectation that many of the professional held for them in their early life. Thanks Sister Dympna for your lack of aspiration for and complete misjudgement of my children - you have spurred them on to achieve at all costs. I take that back. Apparently, I am the inspiration.

I take this opportunity to wish all my friends a very happy Easter, whether or not you believe. This is the time for new beginnings and hope.

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